Leukemia Diagnosis; May 4, 1987

Posted in Leukemia with tags , , on August 20, 2017 by Nancy McLeod

I woke up around eight o’clock. Charlie phoned not long after and told me to hurry up, as he was having trouble with Alex.

I got to the hospital after ten o’clock. The parking lot was completely full, it took me about ten minutes to find a space.

Alex has to have a blood transfusion, as his blood count is too low.

Mom and Dad came around one o’clock. Charlie and I went to their house. Charlie left around two thirty for work. I sat and watched t.v. and played with the dogs. I had ham and a bun for dinner. I went back to the hospital after five o’clock.

Alex was very talkative so it was pretty difficult to get him to go to bed. We got ready for bed around ten o’clock.

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Leukemia Diagnosis

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Leukemia Diagnosis; May 3, 1987

Posted in Leukemia on August 13, 2017 by Nancy McLeod

I woke up around eight o’clock and felt just great. It sure was good sleeping at home, I don’t think I woke up throughout the whole night.

Charlie phoned around nine o’clock thinking that I wasn’t up yet but I was almost ready to go.

I got to the hospital before ten o’clock. Alex wouldn’t take his medicine, so I gave it to him.

We left the hospital after ten o’clock and got home around eleven o’clock. Alex wanted to go to bed he seemed very tired. Alex slept until two or three o’clock.

Alex wanted pizza so Charlie went to Boston Pizza and got a take out.

Alex seemed very tired, I guess his blood count must be down. We ate the pizza and Alex rested some more.

We got back to the hospital before eight o’clock. Alex had his medicine almost right away. I left the hospital around nine o’clock. Alex asked where I was going and Charlie told him I was going to another room in the hospital.

I got home around ten o’clock and it felt okay being in the house by myself. I started to clean up the house. After ten o’clock Shirley phoned, she was at the hospital. She wondered if I wanted some company. I told her okay and she arrived before eleven o’clock.

She said she hadn’t been home all day. Aaron had been complaining about her being out so much. All that does is drive her further away. Shirley stayed until 12:30 a.m. I finished cleaning up and got ready for bed around one o’clock.

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Leukemia Diagnosis

Leukemia Diagnosis; May 2, 1987

Posted in Cancer, Journal, Leukemia with tags , , , , on May 3, 2016 by Nancy McLeod

Alex slept pretty good last night. The nurse came to get blood around seven o’clock, and breakfast came not long after. Charlie came around ten o’clock.

Sheila came and asked if we would like to take Alex home on a day pass for Saturday and Sunday. I said that would be great. Sheila went away to make the necessary arrangements.

Alex had his shot before lunch time. I phoned and told Mom that I wanted to stay at the hospital as Alex was to get chemotherapy today, but I didn’t know what time it would be coming.

Charlie left for work. The chemotherapy came around 2:30 p.m., it took about one hour and then they took the I.V. out.

Dr R came and said Alex could go out on a day pass this weekend. I asked when we could go home and he said well we usually keep them in for about twenty eight days but maybe since you live so close Alex could be a day patient. The doctor said he would look at Alex’s chart and decided when Alex could go home. Maybe by the end of next week.

Dinner came not long after and I then phoned Mom and asked if they could come around seven o’clock.

Alex had been quite naughty all day and I needed a break. Mom and Dad came around 6:45 p.m., I went to their house and did our laundry as Alex didn’t have any clothes to wear tomorrow. After I did the laundry, I had a shower. While I was waiting for the laundry to dry I phoned Shirley to let her know we would be going home on a day pass.

I stopped at McDonald’s and got a take out. I got back to the hospital around nine o’clock. Mom said Paul and Laura came to visit Alex and they brought him a small race track Mom said Laura got all chocked up about Alex. Laura said Alex sure is smart in comparison to my son, Robert. You wouldn’t know there is only a few months between them.

Mom and Dad left shortly after I came back.

It really did Alex and I both good to get away from each other. He was a lot better towards me. We got ready for bed around ten o’clock. There were no people in the other beds, so it felt like we were in a private room. Alex didn’t like it too much, he said all his friends had left and he wanted them to come back.

Tests

WBC .3
HGB 8.7
Platelets 18,000
ANC WBC too low

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Leukemia Diagnosis

Leukemia Diagnosis; May 1, 1987

Posted in Cancer, Journal, Leukemia with tags , , , , on May 3, 2016 by Nancy McLeod

Alex slept pretty good last night. The nurse came to get blood around seven o’clock, and breakfast came not long after. Charlie came around ten o’clock.

Sheila came and asked if we would like to take Alex home on a day pass for Saturday and Sunday. I said that would be great. Sheila went away to make the necessary arrangements.

Alex had his shot before lunch time. I phoned and told Mom that I wanted to stay at the hospital as Alex was to get chemotherapy today, but I didn’t know what time it would be coming.

Charlie left for work. The chemotherapy came around 2:30 p.m., it took about one hour and then they took the I.V. out.

Dr R came and said Alex could go out on a day pass this weekend. I asked when we could go home and he said well we usually keep them in for about twenty eight days but maybe since you live so close Alex could be a day patient. The doctor said he would look at Alex’s chart and decided when Alex could go home. Maybe by the end of next week.

Dinner came not long after and I then phoned Mom and asked if they could come around seven o’clock.

Alex had been quite naughty all day and I needed a break. Mom and Dad came around 6:45 p.m., I went to their house and did our laundry as Alex didn’t have any clothes to wear tomorrow. After I did the laundry, I had a shower. While I was waiting for the laundry to dry I phoned Shirley to let her know we would be going home on a day pass.

I stopped at McDonald’s and got a take out. I got back to the hospital around nine o’clock. Mom said Paul and Laura came to visit Alex and they brought him a small race track Mom said Laura got all chocked up about Alex. Laura said Alex sure is smart in comparison to my son, Robert. You wouldn’t know there is only a few months between them.

Mom and Dad left shortly after I came back.

It really did Alex and I both good to get away from each other. He was a lot better towards me. We got ready for bed around ten o’clock. There were no people in the other beds, so it felt like we were in a private room. Alex didn’t like it too much, he said all his friends had left and he wanted them to come back.

Tests

WBC .3
HGB 8.7
Platelets 18,000
ANC WBC too low

Leukemia Diagnosis; April 30, 1987

Posted in Cancer, Journal, Leukemia with tags , , , , on May 3, 2016 by Nancy McLeod

Alex sleeps pretty good now. Charlie came around ten o’clock. We went into the playroom for lunch. Alex eats really well now. It’s so much better eating in there it’s nice and bright.

Alex is getting back to his old self. I figure he’s getter better, he’s become very bossy. He’s really enjoying the freedom and enjoys all the toys in the playroom. He especially likes the toy car and the gas pump.

Mom and Dad came around one o’clock to sit with Alex. I went to our house as Alex wants to eat rice. Charlie had made Congee yesterday and Alex had eaten almost the whole thermos full of it. I went home to make Alex rice pudding I figured he might like something different.

I made the pudding, cleaned up the house and had a shower. I was just getting ready to go when Annie phoned. She said where the heck have you guys been? I told her Alex was in the hospital and he has Cancer. She said stop kidding me, I said I would never kid about something as serious as that. I then told her everything that had happened. After I told her everything she started telling me her troubles as usual, but I cut her off and told her I had to get back to the hospital.

I went and got a take out from White Spot before going back to the hospital. My throat felt sore so I went to the drugstore to buy Dequadin but they didn’t have any. I got back to the hospital around 6:30 p.m. I wore a mask in case I did have a cold. Mom gave me some Tylenol to take.

Mom said Shirley phoned and she would be up later. Before I had finished dinner Shirley came up. We both ended up wearing a mask, she said she felt a cold coming on as well.

Bart, Jolene, Mrs Chew and Carrie came around seven o’clock. They were very understanding and wanted to know all the details. Bart was quite interested in the medication and the therapy as he had Cancer a few years earlier. Carrie and Alex played in the playroom and had a good time playing with all the toys. They left around eight o’clock. Shirley left not long afterwards.

Alex and I got ready for bed around nine o’clock.

Tests

WBC .5
HGB 8.7
Platelets 32,000
ANC 75

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Leukemia Diagnosis

Leukemia Diagnosis; April 29, 1987

Posted in Cancer, Journal, Leukemia with tags , , , , on May 3, 2016 by Nancy McLeod

Alex seems to be sleeping better now. It’s just me who has trouble I still keep on waking up for no reason.

The nurse came for blood before eight o’clock. Alex still cries every time they come. Alex had breakfast a little later and then we went to the playroom. He sure loves the playroom.

Charlie usually comes in around ten o’clock.

When lunch comes which is about noon, we go to the playroom. Before lunch Alex had a shot. They have to wait about 45 minutes to make sure he doesn’t have a reaction.

Mom and Dad come around one o’clock. Charlie and I went to Mom and Dad’s, Charlie usually goes to work at 2:30 p.m.

I went back to the hospital before four o’clock. I find it really boring sitting around Mom and Dad’s. It’s hard to just sit there after being so busy at the hospital.

I was hoping I would see Dr R but he never turned up.

Mom and Dad left around five o’clock.

I talked to Shirley and she said Brent had a cold. I told her if she came up she would have to wear a mask.

We got ready for bed around nine o’clock.

Tests

WBC 9
HGB 8.8
Platelets 43,000
Blasts 0

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Leukemia Diagnosis

Leukemia Diagnosis; April 28, 1987

Posted in Cancer, Journal, Leukemia with tags , , , , on May 3, 2016 by Nancy McLeod

It’s hard to believe that it’s a week ago that we heard the terrible news. So many things have happened, I feel like I’ll never be the same.

The nurse came and took blood before eight o’clock. Breakfast came not long after. Alex is eating better now. Lunchtime we go to the playroom and Alex eats in there.

Alex went to the gym down on the main floor. He’s not suppose to do anything as he could bleed internally. Alex enjoys the playroom, at least he can play with little cars and some of the other toys while he is still in the wheelchair.

I asked to have Alex moved to the bed beside the window, it would give us a little more privacy. The nurse said it would be okay. Mom and Dad came just a bit later and helped me move Alex’s stuff.

I went home as Alex wanted some steamed rice. I cleaned up the house and did some laundry.

I’ve been having trouble eating since last week. My stomach feels like it is in a knot. I don’t really eat my meals. I don’t feel like cooking anything when I’m home and I don’t buy anything. Shirley left us snack food which I’ve been eating mostly.

I went back to the hospital around five o’clock. Alex’s I.V. stopped gain, the doctors decided it would be okay to leave it out. Dr B came in to see Alex. She asked if Dr R had come to see me. She said he would be in later. He usually comes around in the afternoon, so I usually miss him.

Dr B said Alex is responding to the medicine quite well and he might be able to go home in about a week or so. She said his platelet count was around 46,000 and the number of Cancer cells had gone from 11,950 to 18.

Dr B felt for Alex’s spleen and liver and said she couldn’t feel them. She seemed really amazed at how fast they had gone down.

Mom was upset as Alex wouldn’t eat any dinner. Dad said all Alex would do was lay in bed he hardly even moved. Alex seemed to perk up once I was there. We got ready for bed around nine o’clock.

Tests

WBC .7
HGB 7.5
Platelets 52,000
ANC 112
Blasts 0

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Leukemia Diagnosis